Wednesday, February 8, 2012

Kidney Issues

As if it couldn't get worse..... this is where the title for my Blog comes from.
I am being followed by my Kidney Specialist and I received a call out of the blue in December that went something like this :

"Hi this is ____ from Dr. ____ office.  We are calling to schedule your Biopsy"
Me : " I'm sorry ? "
Office : "We are calling to schedule your Biopsy"
Me: " Of what? "
Office : "Your Kidney"
Me: "Why ?"
Office: "Oh has the Dr. not talked to you yet ? " -- ( Clearly not ) " I will have him call you"
Me: " Yeah thanks for that"
Office: "Well you still need to be scheduled, how is Jan 11th ? "
Me: " Ok Fine"

So the Dr. calls a few hours later and I am a blubbering mess.  Why in God's green earth are we biopsying my Kidney ? I thought I was doing well ? Dr says that I am still spilling a lot of protein.  If I truly had Pre-eclampsia I would have rectified this by now and be back to zero protein.  I'm not even close.  So they would like to biopsy me to see if I have underlying Kidney disease.
(Oh wonderful, something else to worry about ) -- PS My Father is a Kidney Transplant patient from 2008, ya think I have Kidney disease ?  Hmmmmmmm

So I go for the Kidney Biopsy, and I have the results 5 days later..... you guessed it.
I have a Kidney disease called Focal segmental glomerulosclerosis (FSGS)
In lay mans terms my Kidneys are slowing scarring over, and where they are scarred they are not filtering correctly.  Causing Protein spillage and high BP.  ( this masks itself as Pre-Eclampsia in Pregnancy )
So I am being treated for this disease, there is no cure.  I can only ope to slow the disease with medicine, and weight loss.  They say that it is not hereditary, but come on...... what are the odds ?
Also bad news....... according to my OBGYN and Kidney specialist it is not safe for me to carry my own children.

The FSGS causes normally "healthy" women to deliver on average between 25-27 weeks in their pregnancies.  I already did that with Caleb.  It could be detrimental to my health, my Kidney health, and of course I could lose another child.  I just cant put myself, Dan, or anyone through that again.

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